Monday, December 1, 2008

I hope you all had a great Thanksgiving. We went to Stowe, VT and spent the week with the family. We had a great time. Now we are back looking for work, and trying to finish getting things set up for us here. John had his GI appointment today. We spent 7 hours at the hospital. We learned how to change his g-tube, and talked about his feeds, retching, and some meds that we will try if the retching doesn't get better. They want us to vent him more often, to see if that is what might be causing his retching (that is how we burp John, through his tube). We decided to take him off his two meds he has been taking. I didn't give him his meds while he was sick with the flu last week, and haven't given them since. I don't notice any difference, so we are going to stop the meds. I don't mind giving John meds if he needs them, but we have been giving him a lot of meds not sure if he needs them. So as of right now we are not taking any meds besides his nebulizer. We will go back in 6 weeks. John also did his sweat test, which is a test to see if he has Cystic Fibrosis. We are so proud of him for passing this test! Another illness to cross off our list. It was a long day, but we were able to go sit down and have lunch, while John took a nap on the booth. He is the kid that will sleep anywhere. I also gave blood today, which made me feel good. You spend a lot of time at the hospital and you wish you could do something for these kids. So I had some spare time and donated blood. Sienna spent the afternoon with her Gamma Dude. Not much else going on. John has an appointment with his therapists on Wednesday, and then two doctor appointments next week. Once the therapy starts, we will be going 5 days a week.

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