John just had a great week. He is very interested in learning new signs, and seems to be picking up on them faster. He can now do the two signs along with twinkle little star! Very cute. His nose seems to be doing a little better. We are meeting with the ENT doctor tomorrow to see what to do about his sinus infection. Therapy still continues to go very well. We took John to a train show yesterday, and he was absolutely fascinated with the trains. It is so nice to see him starting to have interests. We found a nice park in the town next to us. John is able to use his walker there, and it is so nice to see him independent at the park. I am normally guessing what he wants to do. He even spent some time checking out the fence!
On another note, I quit my job. I tried to give them a 2 week notice, but I just couldn't do it anymore. Some of the people I worked with were great, but the others including the owner weren't nice at all, and I was doing a lot of work that I should not have been doing. I have never just left a job like that, but I just didn't feel like I owed them anything.
So I have started interviewing for another waitress job. I think I have found two, and will find out this week. Both are a lot better run, and seems like a better fit for me. We will be meeting with the school district in two weeks about John starting school in October. I still don't know if I will be able to work full time Monday -Friday, but it will give me so much more freedom to do something with.
Sienna is doing great. She continues to make new friends. She is starting soccer in a few weeks and is very excited. I got her a pink soccer ball to practice with, but it is not allowed to get dirty! We will see how soccer works for us. For those of you interested her Dance recital is on May 17th at noon. Anyone is invited, so if you would like to go, just let me know, and I will get tickets.
We are still excited about our fundraiser for Children's. We have had so many people sponsor us already. Thank you again to everyone that has helped us.

Thank you all who have already sponsored our walk for Children's Hospital. I can't thank you enough for your support. We have almost met our $600 goal, but don't plan on stopping there. We will be a "miracle maker" if we reach $750! I feel like Children's has done so much for us, that this is our way of paying them back. The walk isn't until June 14th, but if you would like to sponsor us, and help so many children similiar to John, and a lot that are worse off than John. Go to
http://howtohelp.childrenshospital.org/walk/pfp/?ID=AJ0041
John is doing well. He doesn't have too much going on this week. He is supposed to see the opthamologist again, but I think I am going to cancel. It isn't that important, and I am starting to be a lot more selective of the things they are doing to him. He will be seeing the ENT doctor next week, and we will then hopefully find out what the next step with his sinus infection is. I hope you all are well. It is starting to look like spring out here, and I can't wait for it to stay warm.

So the website is ready.
http://howtohelp.childrenshospital.org/walk/pfp/?ID=AJ0042
We all need to raise $150 each!
I will be pushing everyone to help!
Thank you all for your support!!!
Anyone is invited to join our team.
TEAM ANGIER

I have been trying do a post, but it has been so nice out I have not been able to find the time. John is doing good. He is cutting his molars, still fighting his sinus infection, and has started a horrible habit...biting. He gets really excited and bites me, and he just thinks it is so funny. I am not sure how to break this habit. When I tell him that is bad, he just continues laughing, and doesn't pay any attention to me.

We have had a busy week. It is finally getting nice out, so we have been able to go for walks, go to the beach, play at the park, etc. This last week John met with the feeding team at Boston Children's. He did pretty good, he sat in the highchair, played with some food, and then threw the jar of food across the room. There were bananas on the door, chairs, walls, ceilings, cabinets...I warned them about this. It was just an evaluation, and I am not sure what we will be doing with them next.

Today we had a follow up at the dentist. We will go back in another month to get his cavity filled. I can't wait.

Today I signed the family up for a walk for Children's hospital. "Team Angier" will be walking 2 miles, on June 14th. We will be looking for sponsors from everyone, so be ready! If you are interested in joining the team, let me know, and I will send out the info. I am working on the website right now, but as soon as I am done with it I will be posting it on this site. I am expecting EVERYONE to help us raise money. So start saving now.

John hasn't been feeling too good. We think his sinuses are bothering him. He woke up the other night and screamed for about two hours. I cranked up his humidifier yesterday, and he seemed to be doing better today. He went to the doctor yesterday, but didn't have a fever, and because of his antibiotics we doubt he has an infection. So we will just keep an eye on him. Tomorrow he is meeting with the feeding team, and the larynthology doctors. We were supposed to meet last week, but the doctor canceled. So now we go tomorrow. I am looking forward to this, as this is a big part of us moving here. I do have to admit that until he gets his sinuses feeling better, I doubt he will want to eat anything. We were at the pharmacy the other day and the pharmacist insisted on John having a lollipop. I tried to tell her no, but she didn't believe me that he didn't like them. So he took it, looked at it, and threw it on the floor. What do you do? Sienna had a playdate today at her friends house. They get along so well, It was so nice, I was able to vacuum the house! I hope you all are doing well.

We had our pulmonary appointment yesterday. To start we are not allergic to the dog and we can keep Jasmine! The bloodwork is more accurate than a skin test, so that is what we will go by. As of his lungs he does not have any type of lung disease. His lungs are plugged by mucus, due to his "chronic sinitius disease". We will be meeting with our ENT doctor about this, and there is a possibility he will have to have a surgery. I am not getting worked up until we know more about this. As for now, he has to switch to another antibiotic for another 30 days, increase his nebulizer uses, and some other meds that I am not sure what the name is. I was told that he cannot return to CB for a while, and he also cannot fly. Not that we had any money to travel, but I was hoping to go visit family soon, and get a break from the East coast. I wish I could say that I am still making the best out of it, but I am wanting to go home. I am just not an East Coast person, and can't imagine staying here for much longer. Oh well, I guess I will have to get used to it. I am here for one reason and that is for John, and he is definitely doing good out here. Sienna asked a couple of days ago when we are going back to CB, and tried to convince me that she can go to Kindergarden in CB. I did good, and told her that her new friends would miss her, but I have to admit that I am having a tough time now. I miss my family, and my friends, and don't know when I will be able to see anyone. I will get through this.