Tuesday, April 28, 2009

I can't believe I haven't written in so long. I guess no news is good news! John continues to do so well. He is still trying to stand on his own and take steps. He is also starting to mimick noises which he has never done before. He even said uh oh the other day. He tries to sing twinkle twinkle little star, although it sounds nothing like the song, it is the same everytime. John is also growing. I can tell because his pants are starting to look too short for him. I am so amazed at how well he is doing. As I have stated before I have been taking a break from all of the doctors (except pulmonary which we will see next week) I finally made all the appointments again, so we will be back on the doctor routine. I have really enjoyed the time we have taken off from the docs. We have almost felt normal again.
I keep forgeting to let everyone know that Sienna's dance recital is coming up. It is May 17th, at noon. If anyone would like to go just let me know. This is a huge deal for her as she has been wanting a recital for almost 2 years now!
As of my jobs, I am still waiting to hear from DCF (Social work). They said they would call either this week or next. I am working at the italian restaurant which is going very well. I really like the owners and the people I work with. It is very well run, and it has been completely packed, and we haven't even had our official opening yet.
We are still looking for sponsors for our walk for Children's next month. I will be sending out another email soon. Thank you to all of you whom have already donated. I am really excited to do my first Children's fundraiser.
I hope you all are well. I am still missing Crested Butte (really just our friends), but have no desire to move back at this point. Seeing John with the progress he has made reminds me everyday that we made the best decision for him. We are currently working with the schools to find him a special ed school for him in October. I know that I have provided him with the best care so that he can live to his highest potential, and will continue to work and advocate for him. I miss you all, and thanks again for all your support.

Wednesday, April 15, 2009















Here are a few easter pics, as well as a not so good shot of Johns first steps. Obviously we have a ways to go, but I am thrilled that he is showing interest in walking and standing on his own. Also the picture of him laying on the ground is him randomly falling asleep while playing in the middle of the room!

Monday, April 13, 2009

I am SOOOOO happy to report to all of you that today John took 3 steps on his own!!!!!!!!YYYYYEEEEAAAAAHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!!!!!!
He holds onto my knees facing me, lets go and walks until he reaches me. I am so excited, and the best is that he is so excited for himself. I just cannot believe that he is doing so well out here.
I hope you all had a wonderful weekend. We went to Vermont, and had a very fun, sugary easter. I think we have enough candy to last us until Halloween. That is even with me helping out! I have been busy, and am not sure where to begin. I got the job at the italian restaurant. I then got a call from social services for an interview. The interview went very well. I am feeling very good about getting the job, but am trying not to get my hopes up. I started the restaurant job last week, and really enjoyed it. It is a nice local italian family (3 boys) who have traveled to Italy and is now opening their second restaurant. They are so nice, and have a lot of respect for their employees. My first night they fed me dinner, I trained for a couple of hours, and then they fed me dinner again with drinks. They served me a total of 9 different selections. Needless to say, I way over ate, and waddled my way home that night. I guess they do this to their new employees to show them they appreciate you coming to work for them. Gotta love those Italians! Today I was training at the new restaurant and got a phone call from social services. They couldn't find my references, and wanted to call and check them today. So I now have my hopes up to get that job. I will hate to leave my new "family" at the restaurant, but the social service job is what I love to do, and it is what I went to college for. So things are looking good for us.
Sienna is doing great. She learned to ski on her own this weekend, and I think her dad is now dreaming of his ski racer he always wanted.
Again, Little John is doing so well. I have been staying away from the doctors. I guess we both need a break. His therapy is what is really benefiting him, and It is great to see him progressing. I will try to post some pics in the next couple of days.

Friday, April 3, 2009

I just realized I never followed up from John's ENT visit. I have been waiting for the doctors to talk, and was supposed to get a phone call. I will have to call on Monday. Basically they do not want to do the sinus surgery on John because of his age. They did want to take out his adnoids. I kind of felt like the doctor didn't know what else to do so this was the only thing he could think of. He wanted me to make the decision, but I was not going to. We decided that he should talk to our pulmonary doctor, and our Primary care doctor and see what the three of them think. I have seen the other two doctors a bunch, and if they recommend it I will consider it. I just don't feel like putting John through a surgery if he doesn't need to.
John is still doing well. I am extremely happy with the things he has been doing. He was collecting all the toys in the bath the other night so that his sister couldn't get them, and he had a play date yesterday, and the two boys fought over a toy the whole time. It was good to see him doing this stuff. We have been doing his feedings during the day, and hopefully soon we can start to stimulate his hunger so he might start to eat.
Things are going well here. I have had three job(waitress) offers, and have narrowed it down to two. I also got an interview on Tuesday for a social work job in a homeless shelter for women and their children. I applied a couple of weeks ago, and never heard anything, so I assumed they found someone else. They called, and I am so excited about this job possibility. It would be similiar to what I did before. It would be through the state which would be wonderful for benefits. I would be working Tues-Sat 3-11:30 pm! It is a little more than I would be working in a restaurant, but at least I would be doing what I like to do, and using my college degree! I would definitely have to hire some help cleaning and taking care of the kids a few hours a week, but I have been very anxious to get back into social work. So wish me luck!