This will probably be a long one as I have a lot to tell you all about! We finally got a diagnosis. We have been talking about this one for a while, but as of now it is our diagnosis. FG Syndrome..What is FG Syndrome? Well, remember Rainman. I recommend looking it up, as it is not an easy one to explain. I have to say, it is kind of fascinating to read about. It explains a lot. I guess 1/3 of infants and toddlers die from respitory infections which explains his illness he had until we got into see pulmonary. So when I say I he almost died there before we left CB, I honestly felt that was true. So my advice to you moms out there, go with your instinct. I have a lot of respect for doctors, and feel they tried their best, but I knew there was more to it, and I did what my instincts told me, and today John is feeling great! As you remember in Rainman, he was extremely brilliant. I have said for a long time that my son is a genius, he just hasn't had a chance to show it. Anyone that has worked with him, or even has met him agrees. That part of rainman is "Savant" we have not been diagnosed with Savant, but I do believe that it is in the future. The original Rainman's name is Kim Peek. If you google him, you will learn that he was diagnosed with FG syndrome just last year. Absolutely fascinating, and if my son was to be diagnosed with anything, this one is not so bad. The best part, is that it is going to be a complete mystery to what this boys future will be like.
One not so good part to this is that more than likely he got the gene from me, which makes Sienna a carrier. So when it is time for her to want children, we will have to work with a specialist. So I guess I better start saving my money now, and hope by then they will be able to work with this.
On another note, it was exactly a year ago yesterday that we landed in Boston. Ironically I had a dream the night before that we had decided to move back to CB now that John is Healthy. It was so great to see our friends, but I have to say, I was bummed to leave what we have going for us out here. I still love my job, and am waiting to hear about grad school. Sienna is doing so well out here. She just finished soccer, and is now starting ice skating. After one lesson she already knows how to ice skate on her own. She is rehersing for the Nutcracker, and has made more friends than I can keep track of. Things are great here. John is doing so well in school, and I could not be happier with his education he is receiving. Sienna's school is equally good, so I am very content with our lives here in Boston. Even Johnny has been doing good considering the economic times, and starting his real estate business at the time he did.
So on that note, it will be very interesting to see where John ends up in life. I can't wait to watch him, as I know he is already so unique, and will continue to keep everyone guessing. I am so lucky to have such a sweet boy in my life. They do not come sweeter than him!